YAS MEETS SANTA

CHRISTMAS

AS YOU KNOW ITS THE CHRISTMAS SEASON AND ITS BEEN A VERY BUSY TIME IVE JUST ABOUT GOT ALL THE PRESENT SORTED AND NOW ITS THE BIG CLEAN UP ALL READY FOR THE BIG DAY TUES 25TH.YAS IS DOING REALLY WELL AT SCHOOL AND THIS YEAR SHE IS SO EXCITED ABOUT SANTA COMING TO VISIT HER.AS YOU MIGHT HAVE GUEST SHE HAS SO MANY PRESENTS IT WILL TAKE HER ALL DAY TO OPEN THEM, BUT THAT IS WHAT MAKES ITS SO SPECIAL.THE TREE IS A BARBIE PINK THIS YEAR AND I LOVE IT WHEN YAS TURNS THE LIGHTS ON EVERY MORNING HER FACE IS A PICTURE.IN HER SLEPT SHE SINGS JINGLE BELLS OR JUST SHOUTS OUT CHRISTMAS.AT SCHOOL THEY HAVE BEEN BUSY MAKING CARDS AND CAKES AS WELL AS ALL THE FESTIVE OUTING ONE DAY SHE BOUGHT A HUGE PIZZA HOME.
SHE HAS 2 LOVELY CARERS WHO PICK HER UP AND DROP HER OFF IT ONLY TOOK A MATTER OF DAYS BEFORE SHE KNEW THEM BY NAME WHICH WAS MORE THAN I DID. HA! ANY WAY MERRY CHRISTMAS TO YOU ALL AND HERE ARE A FEW FUN PICS.SHARON X

GRANDADS BIRTHDAY

WELL we had a nice surprise for granddads birthday paris yasmins sister was coming for a visit she was flying to eygpt from gatwick so they popped in for a hour.
it was lovely to see her and yasmin was over the moon she grows every time i see her she is only 3years 8months. paris was born on the same day as her mum yet they are so different. IF any thing yasmin looks more like her mum between the 2, still paris bought me in a great big bunch of flowers. which reminds me has any one flown on a plane because i was wondering if i could fly her to france to see my sister.its the noise levels please let me know.As i have never seen my sister new house and i wont go without her.sharon x

1ST WEEK OVER

Well it all seems to be going well, she loves going to school by taxi every morning,waking up
is not a problem either (it is for me though)she bumped her head today and was sent to the nurse who promptly phoned to say she was alright.I Thought you should see what she does at home when she having a paddy.
Its fire work night over here as she loves to see the pretty colors she is not so keen on the loud banging noises.so she stands with her hands over her ears while screaming out horay over and over again.
weds is another appointment at the hospital for her eyes.she has a squint in both eyes but is able to move them at the same time to focus with, just as well because there is no way yas would keep glasses on.
i just like to give you all a big hug for all your nice comments and keeping me sane.thanks sharon x

NEW SCHOOL

OCTOBER 29TH 2007

Its the last day of end of term yas and i have had a whale of a time.Just hanging out eating

to much chocolate and ice cream.Laughing and generally making a mess.

Yas starts her new school tomorrow she will have to be there for 8.45am this will be a shock as her bed time is quite late but isn,t a early riser (just like her mum and me come to think of it ha!)
sometimes though i wish i could cocoon her and stay in our little world away from all the blue
meanies .my husband notices the change now when shes been home how much happier she is.
okay i know i know just sometimes.
her Audiology test was last week it cost me $34 in cab fair only to be told and i quote good hearing. Big deal i could have told him that.
What i have noticed though if i hadnt taught yas her colors, shapes,numbers and words no one else would have. certainly not playschool nor the latest school seem to have proper learning time.Is this the case in america ?
any way i will let you know how she gets on in the mean time heres the loves of my life.sharon x

OCTOBER 22 ND 2007

DO THEY REALLY UNDERSTAND WS

NURSERY

yas was supposed to stay until after Christmas in jan but to my surprise they asked if she could
visit a special needs school which is in the next town. we did this twice in which yas bit 2 boys and was duelly told this would be her school after end of term. so last Friday with a school mug
and a book she left her beloved nursery.

DARK DAYS

I HAVE A PROBLEM YAS IS BITING CHILDREN IN NURSERY

AT first crawley police with held information as to where jade died and to

this day they still haven,t told us. Friends started calling,of course with there

own version. when emma her friend rang she was histericail i couldn,t make

out what she saying it seems jade was a sleep in that chair all day with people

coming and going untill 5 pm that evening when someone commented on her color

that an ambulance was called of cause as you know it was to late.

The coroner office were as bad as the police at first i rang them every day,

he seemed to be put out to answer any of my questions. SO this is how it

was all through November, December Christmas 2006 was and still is a blur

for me.New year eve i was to see in tears and finally on feb 2nd 2007

her body was finally released. The one and only time the coroner phoned .

Sadly Paris went to live with her other grandma but we kept in touch by the way of mail ,email

visits when possible.

yas started nursery and things where looking up, she absolutely loves it and they seemed to love her.THEN it started to go wrong it seems Yasmin violent behaviour which began with her sister

is now raising it ugly head at nursery. She bites, head butts and pushes the children and staff

yas was supposed to stay until after Christmas in jan but to my surprise they asked if she could
visit a special needs school which is in the next town. we did this twice in which yas bit 2 boys and was duelly told this would be her school after end of term. so last Friday with a school mug
and a book she left her beloved nursery.

after

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WILLIAMS SYNDROME

I have a problem yas keeps biting OTHER CHILDREN

   HI being one in thousands of grandparents bringing up
grandchildren.I thought i will write a blog to
catch up with the big wide world.
I am partically interested to here from any one
who has experiance in bringing up a williams syndrome
 child of which one of my grandaughter has. i would like
  to hear from you.share thoughts, pics and the differences
  in this syndrome.
  just sometimes its better to know you are not alone
  if you are interested get in touch speak to you soon
   sharon x
Yamin was born on the 5/6/2003  and her sister Paris  was born just 9 months
after .
Yas was a very lovely baby always happy ,BUT  she became very aggressive
towards her sister.
OUR daughter Jade found this so upsettting so yas stayed with us most
of the time, as we
only lived less than hours drive apart it suited us all
(as we had lost  our own baby chelsea in 1996 )
WE are dotty on yasmin so when on the accassions she did go home,
Jade seemed to recent her .
YASMIN  had many tests for her behavour  and when she was 2 a
docter in horsham took one look at her
and told my daughter she had william syndrome  tests confirmed this .
By now jade could not cope as yas had returned to go to a special
needs school and on march 19th 2006
yas was sent to us permantly. at frist this was a big shock not being able
to have a break and send her home
for a couple of days and jade had stayed away to give her time to settle.
then after a few months jade and her boyfriend of the time wanted to TAKE
yas
away for the weekend ,
as i had to agree as there was nothing in writing she went away with them.
I HATED her not being
with me so we arranged jade to stay with us every month to have quality
time with her daughter
while steve her boyfriend looked after paris or bringing her to me so i
could catch up with my other grandaughter.

THE WORST DAY OF MY LIFE
On  7th of november  2006  2 police women knocked on our door about 11pm
to reveal my daughter JADE
had died she had been out drinking round her friends  and feel asleep
in the chair and simply never woke up.
She was just 4 months short of her 30th birthday.


 

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