Friday 14 September 2007

WILLIAMS SYNDROME


I have a problem yas keeps biting OTHER CHILDREN
  




HI being one in thousands of grandparents bringing up
grandchildren.I thought i will write a blog to
catch up with the big wide world.
I am partically interested to here from any one
who has experiance in bringing up a williams syndrome
child of which one of my grandaughter has. i would like
to hear from you.share thoughts, pics and the differences
in this syndrome.
just sometimes its better to know you are not alone
if you are interested get in touch speak to you soon
sharon x
Yamin was born on the 5/6/2003 and her sister Paris was born just 9 months
after .
Yas was a very lovely baby always happy ,BUT she became very aggressive
towards her sister.
OUR daughter Jade found this so upsettting so yas stayed with us most
of the time, as we
only lived less than hours drive apart it suited us all
(as we had lost our own baby chelsea in 1996 )
WE are dotty on yasmin so when on the accassions she did go home,
Jade seemed to recent her .
YASMIN had many tests for her behavour and when she was 2 a
docter in horsham took one look at her
and told my daughter she had william syndrome tests confirmed this .
By now jade could not cope as yas had returned to go to a special
needs school and on march 19th 2006
yas was sent to us permantly. at frist this was a big shock not being able
to have a break and send her home
for a couple of days and jade had stayed away to give her time to settle.
then after a few months jade and her boyfriend of the time wanted to TAKE
yas
away for the weekend ,
as i had to agree as there was nothing in writing she went away with them.
I HATED her not being
with me so we arranged jade to stay with us every month to have quality
time with her daughter
while steve her boyfriend looked after paris or bringing her to me so i
could catch up with my other grandaughter.

THE WORST DAY OF MY LIFE
On 7th of november 2006 2 police women knocked on our door about 11pm
to reveal my daughter JADE
had died she had been out drinking round her friends and feel asleep
in the chair and simply never woke up.
She was just 4 months short of her 30th birthday.













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