Friday 14 September 2007

WILLIAMS SYNDROME


I have a problem yas keeps biting OTHER CHILDREN
  




HI being one in thousands of grandparents bringing up
grandchildren.I thought i will write a blog to
catch up with the big wide world.
I am partically interested to here from any one
who has experiance in bringing up a williams syndrome
child of which one of my grandaughter has. i would like
to hear from you.share thoughts, pics and the differences
in this syndrome.
just sometimes its better to know you are not alone
if you are interested get in touch speak to you soon
sharon x
Yamin was born on the 5/6/2003 and her sister Paris was born just 9 months
after .
Yas was a very lovely baby always happy ,BUT she became very aggressive
towards her sister.
OUR daughter Jade found this so upsettting so yas stayed with us most
of the time, as we
only lived less than hours drive apart it suited us all
(as we had lost our own baby chelsea in 1996 )
WE are dotty on yasmin so when on the accassions she did go home,
Jade seemed to recent her .
YASMIN had many tests for her behavour and when she was 2 a
docter in horsham took one look at her
and told my daughter she had william syndrome tests confirmed this .
By now jade could not cope as yas had returned to go to a special
needs school and on march 19th 2006
yas was sent to us permantly. at frist this was a big shock not being able
to have a break and send her home
for a couple of days and jade had stayed away to give her time to settle.
then after a few months jade and her boyfriend of the time wanted to TAKE
yas
away for the weekend ,
as i had to agree as there was nothing in writing she went away with them.
I HATED her not being
with me so we arranged jade to stay with us every month to have quality
time with her daughter
while steve her boyfriend looked after paris or bringing her to me so i
could catch up with my other grandaughter.

THE WORST DAY OF MY LIFE
On 7th of november 2006 2 police women knocked on our door about 11pm
to reveal my daughter JADE
had died she had been out drinking round her friends and feel asleep
in the chair and simply never woke up.
She was just 4 months short of her 30th birthday.













>

11 comments:

Tara said...

Hi! My daughter, 3 yrs old, has Williams Syndrome. We have several of us that blog and would love for you to join us! If you click on my blog, I have links to other blogs about children with williams syndrome. We'd love to have your input!
So glad you are blogging!

MY LIFE said...

thanks tara i am so glad you have got in touch please add me to your list
and i promise i will write more a bit new to this blogging lark sharon x

Tara said...

I'll get you added! We'll all be anxious to read your blog, see pics, and get to know your granddaughter.

Tara said...

I really hate to hear what happened to your daughter. That is so sad. makes my heart break.

On my blog you had posted about Melatonin. We do currently give melatonin to Payton, I truly believe her sleeping issues are related to anxiety. I think if they would give her some anxiety medication we would be home free-I think, anyways. I LOVE the pictures of your granddaughter!!! She's beautiful!!!!!

Laura said...

Hello! It's nice to "meet" you!
I found your blog through Tara's. I have an 8yr old daughter with Williams.

camille said...

Hi,
I'm so sorry to read about your daughter, that is so heartbreaking. I'm glad your grandchildren will have you for support.

My son Connor, 2, was diagnosed with WS at 2 months. I wanted to ask where you lived - I noticed you mentioned Horsham. Are you talking about Horsham, PA? If so, we live about 30 min from there. If you want, you can email me at cjlakjer@yahoo.com

Julie said...

Hi Sharon!! Welcome. I have a 20 month old with williams syndrome.

Nancy said...

Welcome to Blog-Land!

My son Erik turned 3 yesterday and has WS.

My heart breaks for you and your loss of Chelsea and Jade. However, your granddaughter is beautiful, and she is so very lucky to have you!

Noel said...

Welcome to the blogging list...

My youngest daughter will be 5 in December and has Williams syndrome. Her name is Abi.
Can't wait to hear more about you and your family.

Noel

Lisa said...

Wow how sad...the girls are lucky to have you...Yas is beautiful, I have a WS bbaby too Tatum...she is 20m now...Yas kinds reminds me of a older version of Tate

mariceli said...

My son Evan has WS and is going to be 2 April 12.